Research & Publications

Use of large-scale privacy protecting record linkages for data sharing to enhance

The National COVID Cohort Collaborative (N3C) is an open science effort led by the NIH National Center for Advancing Translational Sciences aimed at accelerating COVID-19 research

Publication

Excess Deaths for Republicans and Democrats During the COVID-19 Pandemic

Political affiliation has emerged as a potential risk factor for COVID-19, amid evidence that Republican-leaning counties have had higher COVID-19 death rates than Democrat- leaning counties and evidence…

Publication

Assessing the impact of privacy-preserving record linkage on record overlap and patient demographic and clinical characteristics in PCORnetÂ®, the National Patient-Centered Clinical Research Network

This article describes the implementation of a privacy-preserving record linkage (PPRL) solution across PCORnetÂ®, the National Patient-Centered Clinical Research Network.

Publication

Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet

The aim of this study was to determine whether a secure, privacy-preserving record linkage (PPRL) methodology can be implemented in a scalable manner for use in a large…

Publication

Cancer Research Needs Better Databases

This year, a study of ten million people revealed the power of longitudinal research. A team mined a vast medical database of US military personnel, including tissue samples…

Publication

Trends In Outpatient Mental Health Services Use Before And During The COVID-19 Pandemic

Jane M. Zhu, Renae Myers, K. John McConnell, Ximena Levander, and Sunny C. Lin. The COVID-19 pandemic disrupted mental health services delivery across the US, but the extent…

Publication

Real-World Matching Performance of Deidentified Record-Linking Tokens

Elmer V Bernstam, Reuben Joseph Applegate, Alvin Yu, Deepa Chaudhari, Tian Liu, Alex Coda, Jonah Leshin. Objective: Our objective was to evaluate tokens commonly used by clinical research…

Publication

Real-World Evidence Primer

To learn from the evolving lessons of addressing the COVID-19 pandemic and to bolster the future use of real-world data (RWD) and real-world evidence (RWE), The FDA Foundation,…

Explore external research studies made possible by connected real-world data

Use of large-scale privacy protecting record linkages for data sharing to enhance

Use of large-scale privacy protecting record linkages for data sharing to enhance

Excess Deaths for Republicans and Democrats During the COVID-19 Pandemic

Excess Deaths for Republicans and Democrats During the COVID-19 Pandemic

Assessing the impact of privacy-preserving record linkage on record overlap and patient demographic and clinical characteristics in PCORnetÂ®, the National Patient-Centered Clinical Research Network

Assessing the impact of privacy-preserving record linkage on record overlap and patient demographic and clinical characteristics in PCORnetÂ®, the National Patient-Centered Clinical Research Network

Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet

Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet

Cancer Research Needs Better Databases

Cancer Research Needs Better Databases

Trends In Outpatient Mental Health Services Use Before And During The COVID-19 Pandemic

Trends In Outpatient Mental Health Services Use Before And During The COVID-19 Pandemic

Real-World Matching Performance of Deidentified Record-Linking Tokens

Real-World Matching Performance of Deidentified Record-Linking Tokens

Real-World Evidence Primer

Real-World Evidence Primer

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