X-linked myotubular myopathy (XLMTM) is a rare, life-threatening congenital myopathy with multisystem involvement, often requiring invasive ventilator support, gastrostomy tube feeding, and wheelchair use. Understanding healthcare resource utilization…

Study explores real-world treatment patterns and healthcare resource use among patients with generalized myasthenia gravis in Germany.

Efforts to achieve opioid guideline concordant care may be undermined when patients access multiple opioid prescription sources. Limited data are available on the impact of dual-system sources of…

Many individuals experience ongoing symptoms following the onset of COVID-19, characterized as postacute sequelae of SARS-CoV-2 or post-COVID-19 condition (PCC). Less is known about the long-term outcomes for…

Study evaluates long-term outcomes of patients with nonischemic cardiomyopathy and left ventricular dysfunction receiving implantable cardioverter-defibrillators.

Ciox recently partnered with Virginia-based non-profit health system Sentara Healthcare to pilot a tool that makes it easier for expectant mothers to access their health records. The fact…

The National COVID Cohort Collaborative (N3C) is an open science effort led by the NIH National Center for Advancing Translational Sciences aimed at accelerating COVID-19 research

Political affiliation has emerged as a potential risk factor for COVID-19, amid evidence that Republican-leaning counties have had higher COVID-19 death rates than Democrat- leaning counties and evidence…