Case study

The Picture Comes into Focus for Patients Suffering with Rare Eye Disease

A sponsor developing a treatment for retinitis pigmentosa (RP), a rare degenerative hereditary disease, approached Verana Health® to access curated, de-identified data from the American Academy of Ophthalmology IRIS® Registry (Intelligent Research in Sight). The sponsor was interested in better understanding the complex disease burden that RP patients face, including clinical outcomes, comorbidities and total healthcare cost and resource utilization (HCRU).

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