Research and publications

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Featured publications

Adherence and persistence to tafamidis treatment among Medicare beneficiaries in the presence of a patient assistance program

Privacy-Preserving Record Linkage as a Valuable Method to Build More Complete Treatment Journeys

Data linkage multiplies research insights across diverse healthcare sectors

Data Linkage Multiplies Research Insights Across Diverse Healthcare Sectors

Many individuals experience ongoing symptoms following the onset of COVID-19, characterized as postacute sequelae of SARS-CoV-2 or post–COVID-19 condition (PCC). Less is known about the long-term outcomes for these individuals.

One-Year Adverse Outcomes Among US Adults With Post–COVID-19 Condition vs Those Without COVID-19 in a Large Commercial Insurance Database

The National COVID Cohort Collaborative (N3C) is an open science effort led by the NIH National Center for Advancing Translational Sciences aimed at accelerating COVID-19 research

Use of large-scale privacy protecting record linkages for data sharing to enhance

Data Linkage Multiplies Research Insights Across Diverse Healthcare Sectors

Privacy-Preserving Record Linkage as a Valuable Method to Build More Complete Treatment Journeys

Sex differences in COVID-19 mortality: A large US-based cohort study (2020–2022)

Best Practices in Evolving Privacy Frameworks for Patient Age Data: Census Data Study

Digital Musculoskeletal Program Is Associated With Decreased Joint Replacement Rates

Privacy-preserving record linkage across disparate institutions and datasets to enable a learning health system: The national COVID cohort collaborative (N3C) experience

Creation of a data commons for substance misuse related health research through privacy-preserving patient record linkage between hospitals and state agencies

Social and Health Information Platform: Piloting a Standards-Based, Digital Platform Linking Social Determinants of Health Data into Clinical Workflows for Community-Wide Use

Real‑world Analysis of Healthcare Resource Utilization by Patients With X‑linked Myotubular Myopathy (XLMTM) in the United States

One-Year Adverse Outcomes Among US Adults With Post–COVID-19 Condition vs Those Without COVID-19 in a Large Commercial Insurance Database

Use of large-scale privacy protecting record linkages for data sharing to enhance

Excess Deaths for Republicans and Democrats During the COVID-19 Pandemic

Assessing the impact of privacy-preserving record linkage on record overlap and patient demographic and clinical characteristics in PCORnet®, the National Patient-Centered Clinical Research Network

Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet

Cancer Research Needs Better Databases

Real-World Evidence Primer

Real-World Matching Performance of Deidentified Record-Linking Tokens

Impact of overlapping risks of type 2 diabetes and obesity on coronavirus disease severity in the United States

Evaluation of the Association Between Medicare Eligibility and Excess Deaths During the COVID-19 Pandemic in the US

Trends In Outpatient Mental Health Services Use Before And During The COVID-19 Pandemic

Amivantamab compared with real-world therapies in patients with NSCLC with EGFR Exon 20 insertion mutations who have progressed after platinum doublet chemotherapy

Variability in comorbidities and health services use across homeless typologies: multicenter data linkage between healthcare and homeless systems

Relative Effectiveness of the Cell-derived Inactivated Quadrivalent Influenza Vaccine Versus Egg-derived Inactivated Quadrivalent Influenza Vaccines in Preventing Influenza-related Medical Encounters During the 2018–19 Influenza Season in the US

Primary Care in the COVID-19 Pandemic: Chronic Care Management During the COVID-19 Pandemic

Intra-household Transmission of Infectious Disease and Gender Inequality

The Impact of COVID-19 on the Use of Preventive Health Care

Analysis of Electronic Medical Record Data Shows Significantly Higher Rates of COVID-19 Infection among Hispanic and Black Patients

Further Evidence That COVID-19 Disproportionately Impacts African American, Hispanic, and Low-Income Populations

Socioeconomic Network Heterogeneity and Pandemic Policy Response

Computable Phenotype Implementation for a National, Multicenter Pragmatic Clinical Trial: Lessons Learned From ADAPTABLE

Daily Deaths During Coronavirus Pandemic by State

Use of Administrative Claims to Assess Outcomes and Treatment Effect in Randomized Clinical Trials for Transcatheter Aortic Valve Replacement: Findings from the Extending Trial-Based Evaluations of Medical Therapies Using Novel Sources of Data Study

Privacy-Preserving Record Linkage to Identify Fragmented Electronic Medical Records in the All of Us Research Program

Health Care Utilization Among Homeless Veterans in Chicago

The Patient-Centered Outcomes Research Network Antibiotics and Childhood Growth Study: Implementing Patient Data Linkage

Patients With Persistently Low MELD-Na Scores Continue to be at Risk of Liver Related Death

Administrative Claims Data to Support Pragmatic Clinical Trial Outcome Ascertainment on Cardiovascular Health

The Hispanic Paradox in Patients With Liver Cirrhosis: Current Evidence from a Large Regional Retrospective Cohort Study

Depressive Symptom Prevalence After Intracerebral Hemorrhage: A Multi-Center Study

A Novel Patient Recruitment Strategy: Patient Selection Directly From the Community Through Linkage to Clinical Data

Disease Outcomes and Care Fragmentation among Patients With Systemic Lupus Erythematosus

Validity of Cardiovascular Data From Electronic Sources

Payment Reform Needed to Address Health Disparities of Undiagnosed Diabetic Retinopathy in the City of Chicago

Does Spatial Access to Primary Care Affect Emergency Department Utilization for Nonemergent Conditions?

Distance from Hospital Impacts Adverse Event Detection After Outpatient Endoscopy

An Evaluation of Recurrent Diabetic Ketoacidosis, Fragmentation of Care, and Mortality Across Chicago, Illinois

Design and Implementation of a Privacy Preserving Electronic Health Record Linkage Tool in Chicago

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